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$720 of $40,000
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This fundraiser ended on 08/24/12

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This is the Help Madisen Breathe fund. All funds collected will be used to pay for medical costs and expenses not covered by insurance

Madisen needs to have surgery to help her breathe. Right now her breathing has been very labored. Madisen was born with Holoprosencephaly, Microcephaly, CP, Cleft Lip, Cleft Palate, Diabetes Insipidus, non verbal, gtube just to name a few of her diagnosis.Her endocrine system is all out of whack and cannot regulater her body temperature. Her cleft lip and palate were repaired many years ago at UCLA.

Madisen has struggled to thrive most of her life. We are beating the odds she is 10 years old now. When she was diagnosed they told us she wouldn't make it past her first birthday.Madisen eats and takes all her medicines by gtube. In the past year Madisen has done so well that she has gained weight. The weight gain has been a welcomed blessing but it has now caused problems with her breathing. Madisen does not have a bridge to her nose and her nostrils are deformed and lay flat on her face. With the weight gain she is cutting off her airway with her upper lip and her tongue is too big for her mouth.

On July 19th she will be having surgery to fix her nose. They will be doing a bone graft from her skull and putting that bone in the bridge of her nose so they can lift up her nostrils. They will also be reducing the size of her tongue to help open her airway. The hospital is treating us like a "cash" patient due to problems with my insurance. We need $500 up front when we walk in for surgery. The hospital estimates the cost of surgery and hospital stay will be $40,000. We are in desperate need to come up with this money. We just want to do all that is possible to provide our daughter with the best quality of life possible.
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