$1,790 of $75,000
25 donations

This fundraiser ended on 01/09/13

Create a fundraiser like this

Camryn has a genetic disease causing her to have very low muscle tone in her body. We are trying to raise money to help support her needs.

Camryn is a 3 year old girl with the diagnosis of congenital fiber type disproportion(CFTD), a serious muscle disease. She is under the care of a number of specialist at Children's Hospital Boston (CHB), including neurology, cardiology, genetics, and gastroenterology. She has also had a number of surgical procedures and passed many milestones that doctors never thought she would reach. She is the only known documented case to ever miss this specific gene, so there is no known cure. Camryn receives physical therapy, occupational therapy, and speech therapy on a daily basis at the pre-school she attends. Camryn's situation is unusual in that she has severe motor difficulties, but is cognitively advanced for her age and has lots of love to give.
She loves music and dancing (her favorite is Justin Bieber).

Camryn's mom is a single parent who struggles day in and day out to support her child's needs. Not only emotionally, but financially and physically. Because Camryn cannot walk on her own, she has to be carried in and out of the car, up and down the stairs of her second floor apartment, in and out of bed, in and out of the shower, and every other physical activity. Camryn's only way of getting around on her own is to scoot on her back and wiggle her way around from room to room. She is at the age where she wants to be independent but has to depend on her "SmartTrike", a toddler bike, which she has outgrown. She is now in need of a motorized chair, but her current apartment can not support such motorized equipment, nor can her mom's Ford Fusion.
Camryn's mom is struggling trying to get a handicap accessible place to live within her school district and handicap accessible vehicle.

Help us help Camryn gain the independence that we all take advantage of daily. Thanks for reading their story, we appreciate it!
View more

Supporter activity

Login to post a comment
or Login