Gracie May's Medical
Please join with Gracie's family and friends to raise the money she needs to help her in her fight with CRPS and keep her leg.
Hi my name is Gracie May Roecker or “May” for short. I would like to tell you a little about me . I am an 8 year old girl and in the middle of 6 kids. When I was 3 months old I started having Epileptic Seizures. The doctors could not do much to help me but I was still a happy little girl. At the age of 4 I had my last seizure. I had the best time not being in pain all day. That was short lived when 6 months later I had a new pain. The doctors said it was Juvenile Rheumatoid Arthritis. That still didn’t get me down though. I love school and animals and hope to be a vet someday.
I am now 8 and have a new pain, but this one is worse. It took a lot of doctors to get this one right. They have now told us that I have Complex Regional Pain Syndrome or CRPS. This is a chronic pain condition that can effect any area of the body often effecting an arm or a leg. This means my nerves aren’t working right.
It all started when I broke my ankle before Christmas. This spreads very quickly and attacks the nerves and causes a lot of pain. It may also spread to another part of the body resulting in multi functional loss, impairment and disability. Though treatment is often unsuccessful early detection is key. Multiple types of Physical Therapy can cause dramatic improvement of the symptoms in some patients.
My doctors at Children's Hospital in Colorado are trying some new treatments because this is a very rare condition for children to get and they aren't sure how this will all effect my arthritis.
The doctors told me that I might lose my leg if the treatments don’t work. I have to be very careful not to get injured because this condition can attack anywhere in my body. Please help me try to save my leg.
I have many doctors appointments every week and may have many more procedures. Insurance only covers some of the costs and doesn't cover hardly any of the therapy needed to stop the progression of this disease.