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This fundraiser ended on 09/30/12

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The friends and family of Adam Phillips are coming together to help assist in daily costs of treating Ehlers-Danlos syndrome!

As a teenager, Adam was diagnosed with Ulcerative Colitis with is currently being treated with monthly infusions of Remicade to keep it in remission. In 2003, after some new symptoms warranted checking, he was diagnosed with a rare disorder called Ehlers-Danlos Syndrome. He has the Joint Hyper-mobility type or type III. Every day living has become difficult as are the rising costs of treatment. There is no cure but medications are given frequently. Adam also needs a scooter prescribed by his physician for better mobility and being able to continue to teach in his classroom during the school year. Most recently he has been diagnosed with Autonomic Neuropathy and Orthostatic Hypotension. Adam's nerves in his legs and feet are damaged which is connected to his Ehlers-Danlos syndrome. He is currently being treated with more medication. If this does not help, we have more testing and doctors visits ahead to help assist in the management of his symptoms. All of these things considered, the mounting costs of medical bills/debt is overwhelming and taking its toll on the family financially.

Any money given will be used solely towards managing Adam's ongoing medical treatments.

If you have any questions or suggestions, or just need to speak to a family representative, please call Amanda at 704-819-4147 or email at

If you want to send a check by mail please address to:
Adam Phillips
1115 Belrose Lane
Charlotte, NC 28209

All of your donations, thoughts and prayers are deeply appreciated!
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