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This fundraiser ended on 02/15/12

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We're uniting to raise money to help purchase vital medication and equipment for six-year-old Aloshua Schulist.

Six year old Aloshua is a former 27 week preemie with chronic lung disease, an Arnold Chiari Malformation, spina bifida, and a genetic defect amongst a host of other serious medical problems. He requires intensive treatments daily, must use a ventilator each night, and can walk short distances only with the aid of a walker and full leg braces. He has undergone nineteen surgeries, has spent three cumulative years hospitalized, and faces a host of medical challenges every day.

In September, Aloshua went into respiratory distress and was rushed to Children's Hospital in Little Rock, Arkansas. While there, his family found out that Aloshua has pseudomonas aeruginosa in his lungs. Pseudomonas is a common bacteria found in a variety of environments that can cause serious disease in humans and animals alike. For severely ill children like Aloshua, the disease can be fatal if not properly treated.

The only approved treatment for pseudomonas like this is an inhalation antibiotic that must be given in continual 28-day cycles. That is to say, Aloshua takes the antibiotic for 28-days, then stops for 28-days, and then begins another 28-day cycle. Aloshua may very well be on the antibiotic for years. Because the antibiotic is so expensive, his insurance provider only covers it for patients with cystic fibrosis, leaving his mom facing a $4,500.00 bill for one medication every other month.

Soon, his supply will run out and his mom is faced with paying out of pocket to acquire the medication for the cycle starting in January. We don't know when his doctors will get an insurance waiver approved or if they will, and with the next cycle quickly approaching, the situation is becoming critical.

Aloshua is severely immuno-compromised: A cold for him can mean weeks in pediatric intensive care. With the flu and RSV season now underway, it’s vital that we get him enough of the medication to last until his doctors are able to get the waiver approved (or convince the company that makes the medication to provide the medication to him at a reduced cost as part of a patient assistance program) so he has no setbacks.

In addition to this expense, the van used to transport Losh is in need of repair. A rod in the engine broke, and it's going to cost a small fortune to get it repaired or to get Aloshua into a new wheelchair accessible van. Aloshua lives sixty miles from Children’s and his local hospital is not equipped to treat him in an emergency such as happened in September. So we really need to get him into a new van quickly.

Two cycles of the medication is $9,000.00 (without applicable taxes). The IPV machine (used to break up mucus in the lungs and help keep the airways clear) he needs to replace his broken machine is $5,609.19. The van repairs were assessed by a local mechanic at $3,500.00. All told, we need to raise close to $18,000.00. It’s a daunting task, particularly for a single mother with a child like Losh.

Please join Aloshua's family and friends and help support this amazing little boy and his family in their time of need by donating to his fund here.

All proceeds will benefit Aloshua, and donors will be entered into drawings for various prizes (such as a baseball autographed by the Arkansas Travelers baseball team, an autographed copy of the original "Fade" manuscript from author A.K. Morgen, a free room at a luxury hotel, gift cards, and many more). All $5.00 donors will also receive a compilation of short stories and fanfiction themed one-shots from participating authors.

For more information on Aloshua, his inspiring story, prizes being offered by the community, upcoming events to benefit Aloshua, and other ways you can help, please visit the Team Losh blog at http://teamlosh.blogspot.com.

If you would like to help in another way, donate an item, or have questions, please email us at teamlosh@gmail.com.
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