Casen is undergoing multiple genetic tests to determine what his Congenital Vascular Malformation is. We have been given various diagnosis all of which are extremely scary and limit the quality and life expectancy of our little guy. We are travelling to Johns Hopkins in July to meet with 2 world renowned doctors for guidance and assistance in determining a treatment plan or enrolling us in a research study to determine the diagnosis if genetic testing does not give us any answers. A doctor in Belgium is the only doctor to have seen anything like Casen's vascular markings to date, we hope to go to him for answers.
We continue to pray and have faith that he will live a long healthy life.
Thank you for your assistance during this time of the unknown.