Top
$125 of $6,000
2%
2 donations

This fundraiser ended on 09/02/11

Create a fundraiser like this

The family of Christopher Sferra is hoping to raise money to help with the financial burden of Moyamoya disease. Please help if you can!

Thank you for visiting Christopher's page!.

My son Christopher is a 12 year old boy who was born with Down Syndrome, diagnosed with Autism at age 5 and Celiac Disease at age 10. He has been through a lot since birth, but we never thought he would face such an illness as Moyamoya Disease. This disease causes narrowing/blockage of the blood vessels in the brain which could cause a stroke, clots, and/or hemorrhages.

In April of this year, Christopher suffered a stroke. He was taken to Children's Hospital of Philadelphia and after many tests, he was diagnosed with Moyamoya Disease. The tests also showed he already had 5 prior "silent" strokes which nobody ever knew of. The hospital did not give us much information on this disease other than it is a progressive disease and there is no cure for it. I did my own research and found 2 doctors at the Children's Hospital in Boston who specialize in this disease. One of the doctors, Dr. Scott, actually pioneered the surgery Christopher needed. I emailed Dr. Scott about Christopher's condition and sent him my son's medical files. That is when I found out Christopher needed surgery as soon as possible!

Christopher had his surgery on May 31, 2011. The surgery is called Pial Synangiosis and Chris needed surgery done on both sides of his head. Neurosurgeons take the good blood vessel(s) from the side of your head and re-route it to your brain, then suture the blood vessel to the brain with hopes that it will grow new, healthy blood vessels. Well, 2 days after surgery, Christopher had another stroke. After spending 11 days in Boston, we finally came home. Three weeks after surgery, Christopher's complications began and have not stopped.

As of today, August 2, 2011, we are preparing to go back to Boston once again this coming Monday because Christopher needs plastic reconstructive surgery on the incision that just will not heal. Right now he has a small hole in the side of his head and you can see his skull! It is scary looking, but doesn't seem to bother him at all.

Barring any other future complications, our next visit to Boston will be in November so Chris can undergo testing to see if the surgery has produced any healthy blood vessels yet.

Thankfully Christopher does have insurance to cover 99% of the medical costs. But, our "out of pocket expenses" are draining us financially. My husband is quickly running out of paid time off from work, but we have to put Christopher's needs above all else. We are also being billed for a portion of the emergency medical air/ambulance transport Christopher needed at one point to go to Boston. And we do not know what the future brings.

I know, in today's economy, a lot of families are struggling financially. Donations made to Christopher"s Angels, are not tax deductible since they are being made to an individual. I hope this does not change your mind! If in any way you can afford to give a donation, no matter what the amount, it will be greatly appreciated and will help not just financially, but also relieve some of our stress. If not, just please keep Christopher and his family in your prayers.
View more

Supporter activity

Login to post a comment
or Login