Corbin and Mckenzie have created 'The Little Allred Girl Spina Bifida Fund' to give their little angel girl to come every chance possible.
Little Lily Norine Allred arrived Friday 6/29/12 at 4:33pm in Salt Lake City. She was all of 4lbs 11oz and 18.5 inches long. The C-Section was a great success and Lily had no real problems getting here...thanks to a brave and wonderful mother...and to the prayers and support of so many. Her spinal opening was very large and...sadly...she was given the level L1/L2 as opposed to what we had hoped would be an L4/L5. We are ever hopeful but it appears that without a miracle...she will not have any significant sensory or motor function below her waist. However, we were prepared for this...and welcome her with all the love in our hearts regardless or her physical packaging;) she is truly perfect in every way that matters.
She underwent major surgery just hours after birth and sailed through as the incredible pediatric neurosurgeons closed her open wound. She has been in the NICU at Primary Children's Hospital for a week now...as they closely monitor her recovery, eating, oxygen levels, and hydrocephalus levels. All who have attended mother and baby have been angles...and have made this experience bearable and at times...even pleasant. Lily will be released today or tomorrow...and with us will begin a life of ups and downs...with all challenges being met with resolve of greater strength. She will have many hospital visits and we expect many more surgeries...but with the help we have been so graciously extended...and your continued support...we will be able to conquer all. Thank you...forever...forever...thank you. Read on for the original story.
My name is Corbin Allred. My wife McKenzie and I can't wait for our new little girl to join the family. However, this little one is due to arrive with some very difficult yet special challenges. She was diagnosed in utero with Spina Bifida of the most severe form, with an opening in her spine just below L4. The complications and implications associated with SB are as varied as the possible outcomes. However, she could not be coming to a more loving home and she will be welcomed with outstretched arms. As her father, I care nothing of how my little girl is gift wrapped, I just can't wait to receive her as a gift.
Sadly, we received the final answer from the last hospital in the country that performs the fetal surgery. It was determined that the risks of the procedure far outweigh any possible benefits based on McKenzie's history of premature delivery. We did all we could to qualify...and feel resolved that it was not meant to be.
Our prayers and the prayers of so many in our little girls behalf have been answered. We were finally able to secure medical assistance with regard to our little girls needs. This profound success will help McKenzie through the next few months and the first several months of our little girls life. This is a huge success...one that we could not have accomplished without the prayers and support of so many. Our urgent needs have been given a brief reprieve.
Although this news is wonderful, we still hold out hope that we can provide for all our little girls needs long into the future...as spina bifida complications are lifelong challenges. We cannot exaggerate the blessing these donations are to our family and our little girl. They will allow her to receive the VERY best in treatment and support throughout the first part of her life...and into the future.
We thank you from the bottom of our hearts for everyone who has supported us. We have literally been carried by your kindness and generosity.
Please continue to support our little girl by following our blog. So many have donated and are continuing to raise funds for her through events all around the country. We stand back in awe of the goodness in people...helping and loving a little girl they've never even met...a little girl who does not even have a name yet.
As you continue to support our family, please know that every penny donated will go directly to our little girl...and her tender care. Upon the completion of PA school, I pray our financial situation changes for the better...and promise to do all I can give back to all my dear friends and family through a lifetime of kindness and charitable service. I look forward to that day. Thank you, in behalf of our sweet daughter, for your consideration.