Top
$270 of $100,000
0%
7 donations

This fundraiser ended on 11/10/12

Create a fundraiser like this

Funds needed for medical costs and related expenses such as a Ketamine Coma and Transplant!

Once an "A " student who loved school, was involved in many extracurricular activities, was a competitive figure skater and violinist, enjoyed spending time with family and friends, Fallon has spent the last couple of years incapacitated, paralyzed, and unable to sit, walk, or even eat. Currently, Fallon is 30 years old and suffering from a rare and life-threatening disease known as Reflex Sympathetic Dystrophy that was diagnosed in May 2001. Fallon was also diagnosed with severe autonomic dysfunction, severe gastroparesis, and a brain tumor.

Imagine being tormented every waking moment of every day by searing pain in your limbs. Your arms and legs feel like they are on fire, they are swollen, hot to the touch or freezing cold, and you are unable to sweat. It feels like all the veins of your body being filled with lighter fluid and light them on fire all the time (24/7). Even minor knocks are agonizing. These are just some of the symptoms of Reflex Sympathetic Dystrophy, a poorly understood nerve disease defined by pain in the limbs that is way out of proportion from what is expected following a particular injury or harmful event, such as a surgery or injury; it is a rare, disabling pain disorder in which ordinary sensations such as touch, warmth, and even coolness are perceived as painful. Fallon suffers daily from constant sharp, stabbing, tingling and burning pain; severe headaches; paralysis; intense muscle spasms; twisting of limbs (dystonia); sensitivity to any touch (allodynia); extreme sensitivity to lights and sounds; inability to sweat; swelling; fevers; softening of bones; decreased hair growth; redness and discoloration of the limbs; and painful skin ulcers. All the doctors have said that Fallon is one of the WORST cases that they have ever seen and they have also had. Experts liken the pain response to that of “an engine revving out of control.” On the medically accepted McGill Pain Scale (0=no pain -to- 50=worst pain) RSD is ranked as the most intense and extreme type of pain you can possibly experience… above a bone fracture, cancer pain, childbirth and even above amputation! Tom Haederle of Johns Hopkins University has described RSD like this: "If Hell were a clinical medical condition, it might look something like my disease."

Fallon has been diagnosed with severe gastroparesis and as a result, her entire GI system doesn't work. Fallon's small and large intestines, stomach, and esophagus are all paralyzed and she cannot swallow. As a result, Fallon is dwindling down in weight, as currently weighs only a mere 70 lbs. She needs a rare and risky transplant that only 8 hospitals in the country perform, and it also carries the highest rejection rate of all transplants. Fallon will receive a small bowel transplant, which will encompass receiving a totally new digestive system (new stomach, esophagus, small and large intestine).

The disease has robbed Fallon of so many joys of life that people take for granted such as being able to walk (have to rely on crutches), going to school full days, taking a shower, going out to socialize with friends, and even eating. Due to how hypersensitive Fallon is, her parents at times can't even kiss her, she can't wear a sock, she can't sleep with a blanket, she can't be bother by vibrations and voice, as these all can make the pain skyrocket. In order for Fallon to somewhat function and make it throughout the day, Fallon takes about 50 pills per day, which all come with side effects. The pain is constant and unrelenting, but despite her suffering, she still has hope for a future. Everyone who knows Fallon is amazed and inspired by how strong and fearless she has been through this entire painful process.

This disease has forced Fallon to become isolated at home. Fallon has seen many doctors, undergone numerous painful tests and procedures, been prescribed various medications, and been hospitalized frequently (including being intubated and on a ventilator). Many doctors have told Fallon that the amount of medications that she takes would be enough to “kill a horse”—yet they have had little to no effect on her. The doctors have stated that they don't "know how she is living" and they don't know how much longer she has left. This disease is literally shutting down Fallon's entire body… organ by organ.

Treatment is extremely expensive and she has to travel nationwide to seek treatment from the top specialists in their fields since her condition is very complex. The pain has been so profound and has affected her body so much that she must undergo the most extreme and expensive of therapies—being placed under a Ketamine coma—to hopefully reset the pain connections of the body and fix the sympathetic nervous system. Ketamine not only has the potential not only to alleviate the Reflex Sympathetic Dystrophy, but also to help all the problems that she is dealing with such as the Gastroparesis. Although Fallon is undergoing weekly ketamine comas in New York, the amount of ketamine that she requires cannot be done here and as a result, she need to go to Florida for a more intensive KETAMINE COMA, which is extremely expensive and not covered by health insurance. Boosters of ketamine will be needed afterwards, which will be additional money.

Fallon also have to travel constantly to Stanford Medical Center, which is where a whole team awaits to treat her for the gastroparesis and for the brain tumor. It is a necessity that Fallon go there because only 8 hospitals in the country perform this transplant, Stanford being one of them. Fallon also needs to go to this hospital for the treatment of the pituitary tumor, as it is causing massive problems within her body (i.e. making her bones deteriorate). Doctors are afraid that she is going to suffer a life-threatening fracture because of how "fragile" her bones have become due to the tumor.

However, without your help, we fear that Fallon won't be able to receive the necessary treatment that she needs since it is very expensive. Fallon is scheduled to have a ketamine coma in Florida, as well as further treatment in California and New York, but we fear that it might have to be canceled due to insufficient funds. Between the treatment sought in California, the transplant, the coma in Florida, as well as the at-home care, we desperately need your help. Fallon's ambition is to become a doctor so that she can make others better, but it won’t be attainable unless she receives treatment and gets better. Please help Fallon because even $1 is one less than I have to worry about.

If you prefer to send a check, please send it to her parents, Gail or Perry Mirsky:
246-10 Francis Lewis Blvd.
Rosedale, NY 11422
View more

Supporter activity

Login to post a comment
or Login