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$370 of $4,969
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9 donations

This fundraiser ended on 09/07/12

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Any and all assistance would be greatly appreciated and be a huge help. Thank you for your time and support!

Debra experienced a minor stroke after an airplane flight in March, 2011. Residual effects of the health incident resulted in job loss and the need for extensive testing and long-term care from various Specialists in Medical Practice to rehabilitate Debra to get her back on her feet again. To-date, March 2012, Debra is under regular care from a medical team including her Rheumatologist and Neurologist for disease management, Mental Therapist for Counseling and Occupational Therapy, and Chiropractor and Physical Therapy services to help with pain management.


Diagnoses resulting from this period of Disease Activity:

- Systemic Lupus Erythematosus (Diagnosis Confirmed August, 2011)
o AKA: SLE
o Long-term Autoimmune Disorder
o Chronic inflammation condition effecting individual with joint pain and swelling, often arthritis (primarily in fingers, hands, wrists and knees), fatigue, General discomfort-uneasiness or ill feeling (malaise), may also include hair loss, mouth sores, sensitivity to sunlight, skin rash (“butterfly rash”), brain and nervous system (headaches, numbness, tingling, seizures, vision problems, personality changes), digestive tract (abdominal pain, nausea, vomiting), heart (abnormal heart rhythms), lung (coughing up blood and difficulty breathing), skin and organ involvement.
o Comorbid disease/conditions affecting Debra:
 Raynaud’s Disease
 Sjogren’s Syndrome
 Evidence of possible early signs for Rheumatoid Arthritis (RA) and/or Osteoarthritis (OA). This condition continues to be carefully monitored.

- Fibromyalgia (Initial Diagnosis February 2004, Re-confirmed August 2011 and March 2012)
o AKA: FM
o Common syndrome in which a person has long-term, body-wide pain and tenderness in the joints, muscles, tendons, and other soft tissues; linked to fatigue, sleep problems, headaches, depression and anxiety
o Often includes Irritable Bowel Syndrome (IBS), memory and concentration problems, numbness and tingling in hands and feet, palpitations, reduced ability to exercise, tension or migraine headaches

- Ehlers-Danlos Syndrome (Diagnosis March 2012- currently scheduled for genetic testing to confirm type/classification)
o AKA: EDS
o Rare disease: Inheritable diseases of connective tissue
o Complications relating to EDS include: Chronic joint pain, early-onset arthritis, difficulty with wound healing
o With type IV/Vascular EDS- high risk of rupture for membrane, major vessels, eyeb, hollow organ (uterus, bowel, eyeball).
 Vascular type is rare but presents with significantly increased risk for rupture of a major organ or blood vessel; individuals affected have a high risk of sudden death.



Status of Debra’s Condition:

Debra experienced a short period of distress with pain and fatigue following the stroke type incident (March 2011) for several weeks, then symptoms improved for several months. Early September 2011 Debra began getting sick and had reoccurring bouts of the illness for the next three months that resulted in full-blown flare up of disease activity with uncontrollable pain, exhaustive fatigue, flu-like illness and severe sleep difficulty compounding the illness. The extreme disease activity persisted without response to any medications from Mid-November 2011 through Mid-January 2012. From Mid-January through late February, Debra started getting some inconsistent response from medication therapies but began to see improvement in her over-all condition.

As of early March 2012, Debra is starting to get longer periods for relatively normal activity for several hours during the day and has varied degrees of pain day by day, sleep has improved some but she is still struggling with moderate to severe fatigue. She is now able to invest some time on most days toward studies and job research in preparation to re-enter the work-force. She continues to strive for disease control to attain enough stability and balance to proceed with plans to complete vocational retraining for a new career that would be more appropriate for her condition so she can operate with flexibility in her commute and work schedule in relation with the extent of her disease activity.

Continuing care with her physicians is critical to Debra's healing. The effects of unemployment and high costs of medical care have put an extreme burden on Debra's finances. Despite her persistence in asking for help and reaching out to find assistance, she has not been able to connect with the right resources that can relieve some of the financial stress and enable her to seek out some of the care she needs for successful rehabilitation.

Debra's health insurance provides tremendous coverage and gives her access to the best doctor's in the Chicagoland area. That insurance comes at a significant cost, and although most services she needs are covered at 100% once she reaches her deductible, Mental Health Services relating to Counseling and Occupational Therapy are only covered up to 50% for in-network providers, regardless of hitting the deductible. She has been receiving this care regularly and was able to get help with the out of pocket expenses for December through February from the first branch of this fundraising effort. Thank you EVERYONE for your help with this, every bit of support has made a huge impact!


Here are some of the things Debra is in critical need for
assistance:

Cost of Mental Health Services (Insurance covers 50%):
- $900 Evaluation/Testing
- $100 per therapy session, 30 sessions allowed per calendar year (Total of $3,000. for therapy sessions.)
- Total cost of these services for 2012 = $3,900.00, insurance covers 50%, Debra's responsibility will be $1,950.00
- Funds received from Branch 1 of fundraiser: $1392 (- 7%/$97 processing/funding fee to disburse payment to doctor) Total of $1294 already paid toward Mental Therapy.

Balance- out of pocket cost for Mental Therapy Services 2012: $655.00
Cost of Health Insurance Premium for 2012: $3114.00
Cost of Health Insurance Deductible for 2012: $1200.00


Total Cost for Medical Expenses for Debra in 2012: $4,969.00
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