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$7,686 of $55,000
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40 donations

This fundraiser ended on 08/24/12

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The Family and friends of Megan Berry are uniting to raise money to help her battle against a rare genetic blood disease called (aHUS).

Just got word. The verdict in Megan's treatment has been overturned. She is fully covered. Thank you Lord Jesus! Thank you to all of our friends and family who have prayed in petition for us. All of you have been so wonderful to our family. We love you all.

 

 

"My name is Megan Berry, I am 19 years old, and was recently diagnosed with an ultra-rare genetic blood disease called Atypical Hemolytic Uremic Syndrome (aHUS). There is no cure for this disease, it is life threatening and lifelong. The only treatment for it is with a drug called Soliris, which only controls the disease to a point. I am covered under my dad’s insurance. He works for the City of Euless. The City of Euless is self-insured, but they have a basic Aetna plan. However, because they are self-insured, their Aetna plan can be tweaked and twisted however they want. The City of Euless is refusing to cover my disease and pay for me to get the treatment. As I mentioned earlier, this is life threatening. So if I do not get the Treatment, I will die. My parents and I have contacted an Attorney, but have yet to hear back from him. We have also contacted Congresswoman Kay Granger's office, but all we were told was "keep doing what you're doing". We are at the end of the line here, and quickly running out of time. I am supposed to get my next treatment this coming Friday, August 24th. It seems that the last option is asking for your help. I need this treatment, and have no other options. Please, help me if you can. Sincerely, Megan Berry"

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