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This fundraiser ended on 09/02/11

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Friends of new born Grace Emilee Liepitz are uniting to raise money for the her medical costs & related expenses not covered by insurance.

Grace Emilee was born to Jane and Gus Liepitz on May 24th, 2011. She weighed 10 pounds, 8 oz. Because she was a large baby, the hospital checked her glucose (blood sugar) levels, which ultimately turned out to be low.

Grace was transferred from Abbott to the NICU at Children's Hospital of Minnesota, and has been working to regulate her glucose levels ever since. She is a courageous and brave little angel who has endured many a poke and prick in the past four weeks. Unfortunately, her body has failed to properly regulate the glucose levels on its own and has not responded to the drug treatments as well as everyone had hoped. After 3 1/2 exhausting, roller-coaster weeks and a series of tests and evaluations, the doctors diagnosed Grace with congenital hyperinsulinism, a rare disorder where the pancreas consistently secretes too much insulin.

The nurses and doctors at Children's (MPLS) were spectacular. Jane and Gus could not have asked for more competent, caring individuals to help them through that phase of their journey. However, they were still not able to help Grace overcome her blood sugar struggle and recommended she be moved via Life Link air transport to the expert care. state-of-the-art screening and surgical treatment available at Children's Hospital in Philadelphia.

Children's Hospital of Philadelphia is the premier Congenitive Hyperinsulinism Center in the country. They, and only they, have a test that helps assess which part of Grace's pancreas is over-active. As a result, Grace, Jane, and Gus travelled to Philadelphia June 21st for further evaluation and ultimately surgery to remove the affected portion of her pancreas. Screening was done on Friday and surgery is scheduled for Tuesday, June 28.

Right now doctors believe the screening shows that Grace has a FOCAL lesion in the body of the pancreas. They will not know for certain until they actually get in there, but for the time being, they are very optimistic and happy about the evaluation. A focal lesion is the better kind to have as Grace's problems with regulating her insulin can be most likely be cured through surgery.

The goal is to get through this surgery and bring Grace home to play with Mom, Dad, and big sister Emma as soon as possible! However, post operation recovery will take anywhere between 4-6 weeks. During this time Jane is staying in Philadelphia. Gus is remaining with Jane in Philly until the surgery is complete and then will return to MN for work and Emma. Loved ones will stagger additional support for Jane out in Philly until she and Grace can return. Gus will go to Philly as often as possible. They hope Emma will be able to make a short weekend trip out as well (seeing as Jane can't imagine 4+ more weeks without her!)

We, friends of Jane and Gus, have rallied to set up some options to help. We and are asking that people who feel so moved contribute to a fund that will help with the many medical costs and related expenses not covered by insurance that are mounting up as Grace continues her journey towards good health.

If you prefer to donate directly to a fund that has also been established for Grace, you may do so by making a check payable to:

Grace Liepitz Fund

and sending it to:

Blaise Porter
5845 Thomas Ave S
Minneapolis, MN 55410

Blaise is a good family friend and will be sure all checks are deposited to the fund.

Thanks to all who donate so generously and keep little Grace and her family in their thoughts and prayers

--Friends of Jane and Gus Liepitz
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