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This fundraiser ended on 06/30/12

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My son has Hypoplastic Left Heart Syndrome with a rare congential heart defect that is fatal if no medical intervention is done.

Our son has a heart defect known as Hypoplastic Left Heart Syndrome. Hypoplastic left heart is a rare type of congenital heart disease. As with most congenital heart defects, there is no known cause.

In patients with this condition, the left side of the heart is unable to send enough blood to the body. As a result, the right side of the heart must maintain the circulation for both the lungs and the body. The right ventricle can support the circulation to both the lungs and the body for a while, but this extra workload eventually causes the right side of the heart to fail. Without any medical intervention there is a 100% mortality rate. No one can survive with HLHS unless one of two things is done. Either they get a heart transplant or they have a set of three open heart surgeries completed to make new connections.

Thomas had OHS on November 4th, 2009 at the age of 5 days, again at 3 1/2 months, and just recently on April 10th, 2012 at two and a half years of age. The first surgeries were extremely successful and he came home two weeks after the first, a week after the second. This last surgery, he has had a few set backs including an infection in his blood,a bad reaction to a medicine, and high fevers. However the fevers have finally broken and he is now on his way to being discharged.

Although I never want to ask anyone for help like this, Thomas' father and I have ran into a new problem. After his second surgery we were denied insurance repeatedly. We have since then been able to get insurance again, but we still are being told we have to pay 25% of the cost. I will probably have to update the goal when the numbers come in, but his past medical bill is around 5 grand and I can't even begin to imagine what his bill will be upon discharge. He has been admitted for a total of 33 days so far, it will be 37 days in total, with heart surgery, catherizations, dental work, and all other medical appointments added into that. We are definitely going to need all the help we can get. Thomas may be in the clear for now medically but this is a life long disease and he may need more surgeries/procedures in the future and I want to keep his bills at a minimum.

If you have any questions, or suggestions or just need to contact a representative for the family please feel free to call me @ (845)820-1238 or email me at

All your generous contributions, thoughts and prayers are deeply appreciated!

Thank you all SO Much!! - Thomas and family (mother Alysha, Dad TJ, and baby brother Ayden.)
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