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This fundraiser ended on 12/30/12

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The family of Sophia Jean Hogan have joined together to raise money for her medical costs and expenses.

Sophia was born with a rare chromosome 6 deletion that was diagnosed on September 20, 2011 when she was 2 weeks old. There are only about 400 cases in the world that are known, but every case is different. Her prognosis: speech, motor skills, developmental and growth delays. Sophia is smaller than the average child and requires physical, occupational and feeding therapies twice a month. Sophia had her first surgery when she was a month old. She stopped bottle feeding and the decision was made to place a g-tube to help her get the necessary nutrients to help her grow. Sophia is still g-tube fed to this day, and is slowing learning how to eat by mouth. Sophia regularly see 9 doctors a month for all the medical issues with her disorder. This has put the family in a financial bind due to costly medical bills. Private insurance does not cover all the expenses and the family has reached out for assistance to programs that Sophia qualifies for and have been denied multiple times. Sophia just had a second surgery to repair her cleft palate that she had when she was born that needed to be repaired so it won't affect her speech when she learns her first words. Sophia cannot sit without assistance and is just learning how to support her head. Sophia requires 24/7 care and her father has assumed the responsibility of her caregiver, where Sophia's mother works full-time to support the family. Our hope for Sophia is to make her a happy and healthy child that will reach her milestones!
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