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This fundraiser ended on 10/31/12

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Joshua, now 13 years continues battling a life threatening disease. Please help us if you possibly can.

Joshua, now 13 years continues battling a life threatening disease.
Please help us if you possibly can.

Sadly, At the age of 3, Joshua was diagnosed with a rare life threatening auto immune disorder that affects less than 1% of the population.

For the past 10 years he has been in and out of the children’s hospital every 3 weeks for several days at a time to receive his treatment to sustain him and continue his quality of life but his body is beginning to reject his treatments and it is time to find a new treatment or hopefully an ultimate solution.

Recently he has been diagnosed with a secondary condition which will require additional treatment, anxiety and, regrettably, cost requiring more care and costs.


The costs are constant and the stress of living with a medically fragile child never ends, but with the support from family, friends and complete strangers we have been and are truly blessed.
We have to take Joshua to Boston to be seen by an immuno therapy facility to be assessed and see if he is a fit for this highly specialized therapy that is new here in the US. If he is not a fit we will then have to take him to Boston to be seen by a Gene Therapy facility to be assessed and see if he is a fit but this treatment is also new to the US. Our last hope will be to take him to London England to be seen by Gene therapy doctors there since they have been doing gene therapy there for almost 20 years now and have more options and testing available. These trips are critical to helping find new treatment options that can lead to more promising outcomes.

We are hoping to postpone or delay either a bone marrow transplant or a stem cell infusion in the near future as a last resort if the Immuno and Gene therapy are not an option or do not work. Unfortunately there is no bone marrow match for him in the registry at this time out of the 13,000,000 donors, another reason these trips are so key for us. They will point us in the right direction and help us to get Joshua into a gene therapy regiment in Boston, or immuno therapy regiment in Philadelphia or as a last resort in the UK this year if at all possible. We will exhaust all avenues in order to prolong and increase the quality of his life.

Those who know Joshua are inspired by his positive attitude and
joy for life. He is a smart, funny, brave and courageous young man who always has a smile
on his face.

At this time, we would like to ask for a small donation to help us travel to meet with these specialists. This trip and teh others will be life saving for our son.
Thank you very much.

Sinerely,

The Hamlins
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