$3,500 of $3,500
23 donations

This fundraiser ended on 02/10/11

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The family and friends of Zachary are trying to raise money to get him the specialty treatment he needs to hope to eat food one day.

Zachary is 2 years old and suffers from a rare autominnume disorder called Eosiniphillic Esophagitis or EE.
Kids with EE are quite literally allergic to food. The proteins in food cause a build up in the digestive tract and blood of a white blood cell called an eosinophil.
Eosinophils are meant to attack parasites, but the body of a child with EE mistakes food for a parasite. As a result, the build up of eosinophils cause numerous and very serious health problems, including, failure to grow and thrive, uncontrollable vomiting, severe stomach and throat pain, inability to sleep, joint pain, just to name a few. Many kids with EE can only eat 1 or 2 foods and have a feeding tube to survive.
Zachary is allergic to all foods, meaning at this point we have not been able to find a food that his body doesn't react to. On top of the EE, Zach also suffers from Congenital Sucrose-Isomaltase Deficiency, which is where his body is lacking enough of the enzymes it needs to digest sugar and starch. Due to these disorders, Zachary recieves all of his nutrition through a feeding tube, or G-Tube located on his stomach. He is on a prescription formula called Elecare that has to be specially ordered. He gets monthly supplies from a medical equipment company and weekly visits from a home nurse. Zachary case is complicated and he is seeing several specialists between Brenner Children's Hospital and Duke Children's Hospital. Unfortunately, the doctors that are treating Zachary are not specialists with this disorder. There are only 2 hospitals in the nation with a children's Eosiniphillic program and we are currently trying to get Zachary into one of them. He needs to go to Cincinnati Children's Hospital to get the care he needs and the shot at having a chance to eat. Currently, it is about $14,000 for the week long hosptial program not including travel or lodging. With help from his insurance company, we are only needing $3000 to get Zachary the treatment he needs. Please help us raise the money to give Zach the hope of eating real food one day!
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