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$745 of $24,000
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13 donations

This fundraiser ended on 04/30/12

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The friends and family of Charlie Byrd are helping raise money to get medicines for Charlie that can't be purchased in the US. Please donate

My 3.5 year old son suffers from Dravet Syndrome. A rare terrible condition resulting from a mutation in his DNA. This mutation causes multiple uncontrollable seizures that affect his ability to learn, walk or speak. There are currently no cures or guaranteed treatments. But there is hope to reduce his seizure amounts by giving him a drug known as STP or Diacomit. It's not FDA approved in the US so we can't afford to purchase it for the 1,000 month out of pocket cost. Our insurance refuses to pay or help and we don't meet income requires for any aid. Please donate any amount you can to help us purchase this medicine for my son. He will never outgrow the seizures but God has lead us to the medicine to help him. Please donate...love and prayers!
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