Top
$525 of $1,000
53%
10 donations

This fundraiser ended on 12/07/12

Create a fundraiser like this

The family of Elyana Rinehart and her parents are uniting to raise money to help with her medical and travel expenses.

Elyana Rinehart, 10 month old daughter of Jason and Cathy Rinehart and sister to two siblings Ema and Eli, has Apert Syndrome.
Some information about what Aperts is. Its a rare genetic condition affecting the skull and facial bones and the limbs. It leads to her skull prematurely fusing, underdevelopment of her facial bones and a very complex pattern of fusion of the fingers and toes. Studies have shown that Apert syndrome occurs somewhere between 1 in 50,000 and 1 in 120,000 births.
She has just had her first surgery which was for a G-Tube and Trach. This is just the first of many many surgeries that she will have throughout her lifetime. Including continuous skull and facial reconstruction, separating her fingers and toes, and unpredicted surgeries or medical interventions. Her family is having a hard time keeping up financially both because of medical bills and because of traveling and taking unpaid time off from work.
Elyana is a beautiful and happy baby with a loving famly all around her. We are all lucky to have her in our lives.
We love you all and thank you for donations, prayers, and all your support. I know that Elyana will appreciate it all someday.
God Bless each and everyone of you,
The Family of Elyana Rinehart

If you would like to contact a family representative please feel free to email khandy444@gmail.com.
*We are working on starting a Facebook Page for Elyana that will give weekly to daily updates.
View more

Updates

Supporter activity

Login to post a comment
or Login