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16 donations

This fundraiser ended on 11/01/11

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The family and friends of Lidia DiConcilis are uniting to raise money to help with her battle againt Opsoclonus Myoclonus Syndrome.

Lidia is an 11 yr. old little girl with Opsoclonus Myoclonus syndrome.OMS is a rare autoimmune disease that affects 1 in 10 million. Lidia was diagnosed with neuroblastoma 2001.with the neuroblastoma,she unfortunately experienced a rare paraneoplastic syndrome (OMS).OMS causes Lidia's immune system to continue to attack her body in response to cancerous cells. Even though Lidia's tumor was removed,her immune system recognizes brain cells as potential cancer cells and continually attacks her brain causing various detrimental symptoms.lidia just got approved to see a specialist in boston after nine long yrs of fighting to see the right doctors. we need help with traveling and expenses that insurance will not cover. we will be making frequent trips to Childrens of Boston.Just got word that Lidia will be doing rituxan chemo along with the IVIG that she is now receiving monthly. thank you so much for taking the time to read this. Please help spread the awareness of OMS and most importantly keep Lidia in your prayers. God bless
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