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This fundraiser ended on 01/01/13

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The family and friends of Raven are uniting to help her battle with whitematter brain disease. PLEASE show your SUPPORT!

Raven is faced with many disadvantages as she is unable to walk,talk or even grow at a normal age rate.
Weighing only 19lbs and at a length of just 31inches;Raven is often left out of many scheduled family,community,and school related events and is often frustrated and tormented over not being included.
As her mother I go above and beyond to assure her comfort and encouragment and often cry in silent not knowing myself the "whys"and the"whenevers".It can be quite overwhelming from time to time;when faced with yet another diagnosis to be ruled out,and sometimes I wonder where the strength arises to get me through it all.
My heart desires to see Raven walk,hear her talk,and have her grow and live the life of a normal little girl and it kills me daily looking into her eyes and know that I cant"kiss it and make it all better"and no matter how hard I try to look beyond her disadvantages it breaks my heart EVERYDAY and I fight the thought of fearing she wont live to see another year.Ive never admited that aloud and dont know if Im comfortable with doing so;but I do know I love my children and will continue to do all I can to assure that they recieve the proper medical services out there with great HOPES of bringing CHANGE and RELIEF to thier lives to the best of my ability!
Its not easy and in life certain circcumstances are not meant to be!
But I have a strong line of FAITH and am confident TOGETHER we can make a difference in Raven's life and the lives of all our children who suffer from the impact of the RARE epidemic.
There are many odds against the RARE affected community;often misjudged or misunderstood;we sometimes give into the impact and "shy away"but not due to the disadvantage itself,but moreso the lack of AWARENESS and level of RELIEF available to accommodate the onset of various levels of INTENSE emotions brought on from the negativity we often face and from places we never expect it.
My Faith has carried me a very long way and Iam thankful to be blessed with the ability to except and respect that life comes with trials.Raven may never walk nor speak and she just may remain at her current weight for another year or even longer!But I cant dwell on that.All I can do is my part...
Will you help me?
Take a step for Raven today or be her voice shouting"HELP ME!"
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