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This fundraiser ended on 07/01/11

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The family of Keira Sullivan is raising money to help with her battle against Walker Warburg Syndrome. Please come show your support!

Keira's battle with Walker Warburg Syndrome, a devastating form of Congenital Muscular Dystrophy continues. Her drive to continue fighting and beat the odds serves as an inspiration to everone, but she and her family cannot continue this battle alone!

We need your help....Keira is very stable, and we thank God for that, but that is because we are doing whatever it takes to keep her stable. That means bringing in the latest therapeutic equipment, such as the cough-assist machine, a chest therapy vest, and other devices meant to help keep her lungs clear and her breathing stable. All this equipment, with all the other care that she requires, is making it very difficult on her family.

Despite being on Medicaid, we are still facing many co-pays, and there are still many items which aren't covered by insurance, such as diapers, some medications and the utilities required to keep her equipment running.

Keira's battle is two-fold. Her battle for survival against the odds, and also her battle to help find a cure for the Congenital Muscular Dystrophies. If we can reach our goal, 25% of the proceeds will go to Cure CMD, an organization which Keira's father volunteers for that is leading the way toward a cure and therapy for the many forms of Congenital Muscular Dystrophy. Thats 2500 dollars that can be used to fund research or to fund travel for the Scientists involved with Cure CMD to go to conferences and collaborate on working toward a cure! Another 25% will go to the Yale Children's Hospital, which we will request they use toward buying new toys or christmas presents next year.

The remaining donations will go towards Keira. We are hoping to buy her new equipment, including an upright bathtub which costs 1200 dollars and isn't covered by insurance. We hope to use some of the donations to attend this year's Cure CMD family conference in Philadelphia from 22-24 July.

We cannot do this alone. Your support in this on-going battle is greatly appreciated, and we thank you! You can follow Keira's battle on Facebook at: http://www.facebook.com/home.php#!/group.php?gid=274712708583 or come back to this site for updates! Thank you again,

Respectfully,

The Sullivan Family
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