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This fundraiser ended on 01/28/13

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The friends and family of Maddy Kearney are uniting to raise money for medical expenses that the family has endured.Any donation is helpful.

I wanted to create this fundraiser for my good friend Elizabeth. Her daughter was diagnosed with cystic fibrosis at birth and has had to endure two serious procedures. She was born with something called maconium illius, a major blockage to her intestines and she had dead intestines that needed to be removed 30 percent. They disconnected her large and small intestine, then stuck them outside her body so they could be used via ostomy bags. The family had to wait 8 weeks before her intestines had to be reconnected.

 

Meanwhile, Maconium illius is a red flag for cystic fibrosis and very rare. When she had a sweat test and it came out positive, then the state blood panels came back positive for only one mutation. There are usually two mutations for cystic fibrosis patients, therefore the family had another genetics to do an extensive test. The extensive test revaled that she has two very rare mutations. One of the mutations is found in three other people in the world. The combination of her mutations have not been found in anyone else throughout the world.

 

Doctors can't tell really what her future will bring. Now her intestines are not working again and the doctors are trying to find answers. Too much for a little baby. Maddy has been in the NICU in Austin, TX since birth (nearly three months) and has never been to her home. The mother and father visit daily with their two daughters who are in middle school. Please keep Maddy in your thoughts and prayers.

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