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This fundraiser ended on 04/01/13

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Family and friends Of Analicia are uniting together to help raise money with her battle against a rare kidney disease. Show your support!!

This is a story about my wonderful, beautiful 9 year old daughter, Analicia.

 Ana goes every summer to west texas to see her dad and his family while she was there She called me several times  saying her eyes were puffy,but of course, I assumed the swelling was due to her allergies. She is allergic to animals, peanuts, watermelon as well as seasonal allergies. She stayed for the summer just like every other summer since she was two.  When she came  home, the first thing i noticed were her puffy eyes , this was not like anything i had seen before with her , she also shows me her feet up to her ankles and they were extremly swollen.  I immediately called my doctor for an appt the next day. The doctor did see her and continued with blood work and a complete urinalysis. The doctor called the next day and wanted to see her again. He did not know what the problem was with Ana but had consulted a doctor at Mother Frances Hospital in Tyler. Ana was admitted to the hospital that day.  They explained that she had an extreme amount of  protein and blood in her urine. The doctor there conferred with the nephrologists (kidney specialist) at Childrens Hospital in Dallas.  It was determined that Ana be transported by ambulance to Childrens Hospital in Dallas.

 

She stayed in the hospital almost 2 wks until we finally received a diagnosis for her. She was diagnosed with Membranoproliferative Glomerulonephritis. Her kidneys were not functioning well. They did a kidney biopsy and sent it off because it had the doctors at childrens stumped. The only thing the doctors, who are among the top nephrologists in the nation,  can tell us was "The biopsy shows she has MPGN type 1 but her blood work shows she has MPGN type 2". The doctors at childrens say her case is the most complicated they have ever seen.  

 MPGN is a chronic condition. The prognosis varies from child to child. Over time, more of the glomeruli may become damaged, which affects the child’s overall kidney function. MPGN will eventually progress to kidney failure. In a study of caring for children with MPGN at GOSH, two in 25 children died and a third of patients had irreversible kidney damage. When the kidney function drops to a level where it is affecting  her daily life,  dialysis and transplantation are the next steps. This is called renal replacement therapy (RRT) and aims to keep her well until a transplant is possible. There is a 90% chance that the disease will come back in the transplanted kidney.  

 MPGN has two different subtypes: type I and type II. Most cases of the disorder are type I. Type II is much less common and is a more aggressive form of the disease. Type ll is what Ana has been diagnosed with.

Treatment of MPGN depends on the severity of her condition. There is no cure for the disease. Treatment focuses on controlling symptoms and slowing the progression of the disease. Ana has been ordered  to change her whole diet. She has to limit her intake of salt, protein, and fluids.Her doctor has also prescribed medications to control  her extremly high blood pressure. She is also taking Medications to suppress her immune system. As the disease progresses more and more damage will be done to the kidneys and there is nothing we can do to stop it. 

We are asking for donations to cover medical costs that insurance wont cover. And for traveling expenses, we live two hours from Ana's Doctor. She has been admiditted to hospital 11 times in 5 months and had multiple doctors visits in between those admitions. Its getting harder and harder as time goes on to pay for gas and car repairs. Anything helps nothing is too small. 

 

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