$535 of $1,000
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This fundraiser ended on 10/01/11

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The family & friends of Grace have come together to raise money to help while Grace is having more surgery from complications of SMA

AS MOST OF YOU KNOW BY NOW, GRACE HAD THE VEPTR PLACEMENT BACK SURGEY ON 8/8/11. SHE IS NOW BACK IN THE HOSPITAL DUE TO COMPLICATIONS OF INTERNAL & EXTERNAL INFECTIONS FROM THE BOTTOM LEFT INCISION. & IT IS NOT HEALING. SHE GOES BACK IN FOR MORE SURGERY 8/16/11 @ 3PM. IF ANYONE WOULD LIKE TO HELP PLEASE MAKE A DONATION. ONCE AGAIN ROBIN IS OUT OF WORK. I WANT EVERYONE TO KNOW THIS IS NOT A SCAM... THIS IS REAL!! FOR MORE INFO ON GRACE PLEASE VISIT GRACE'S PRAYER ON FACEBOOK & YOU CAN SEE HER IN PICTURES ON CAMP RAE FACEBOOK PAGE & WWW.CAMPRAE.ORG This Fundraiser has been put together by Family & Friends of Robin. Robin is out of work b/c Grace had back surgery. PLEASE HELP if you can! EVERY SINGLE $1 HELPS!! She adopted her little girl Bethany "Grace" Dixon when she was a few weeks old. When she was 16 months old, she got the devastating diagnosis of Spinal Muscular Atrophy Type II. @ the time of her diagnosis, they said she would be lucky if she lived to be 2. She is now 5. Robin is the sole provider for Grace & her 3 sons ages 13, 15, & 17.
Spinal Muscular Atrophy (SMA) is a motor neuron disease. SMA affects muscles throughout the body, although the proximal muscles (those closest to the trunk of one’s body - i.e. shoulders, hips, and back) are often most severely affected. Weakness in the legs is generally greater than in the arms. Sometimes feeding and swallowing can be affected. Involvement of respiratory muscles (muscles involved in breathing and coughing) can lead to an increased tendency for pneumonia and other lung problems. Sensation and the ability to feel are not affected. Intellectual activity is normal and it is often observed that patients with SMA are unusually bright and sociable. SMA is an autosomal recessive genetic disease. An individual with SMA has a missing or mutated gene (SMN1, or survival motor neuron 1) that produces a protein in the body called Survival Motor Neuron (SMN) protein. This protein deficiency has its most severe affect on motor neurons. Motor neurons are nerve cells in the spinal cord which send out nerve fibers to muscles throughout the body. Since SMN protein is critical to the survival and health of motor neurons, without this protein nerve cells may atrophy, shrink and eventually die, resulting in muscle weakness. As a child with SMA grows their bodies are doubly stressed, first by the decrease in motor neurons and then by the increased demands on the nerve and muscle cells as their bodies grow larger. The resulting muscle atrophy can cause weakness and bone and spinal deformities that may lead to further loss of function, as well as additional compromise of the respiratory (breathing) system.
Scoliosis occurs at some point in essentially all children with SMA Type I and II and some Type III. Scoliosis can restrict breathing and pulmonary function, necessary precautions should be taken early. Spinal muscular atrophy (SMA), is the number one genetic killer of children under the age of two.

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