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This fundraiser ended on 06/01/12

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Please help keep our little girl safe! Thank you for taking the time to read this! Rhonda, Hank, Allison & Aiden

Hi all! I'm not sure the best way to start so I'm just going to get right to it. You may or may not know that last December after I went into cardiac arrest I was diagnosed with a very rare inborn heart disorder called Long QT syndrome. (LQTS is a disorder of the hearts electrical activity. It can cause sudden uncontrollable dangerous arrhythmias in response to exercise or stress. These tachyarrhythmias can lead to syncope, cardiac arrest or sudden death.). So under my doctors advice I was fitted with an implanted cardioverter defibrillator. So now if I have another event the ICD/pacemaker will pace down the erratic heart beats or if my heart stops again it will shock it back to beating correctly.
This is a genetic disorder, passed down through my mothers side of the family. My Mom, as well as my sister also have this condition. This prompted my to have Allison and Aiden tested to see if they carried this gene as well. They both had several EKG's and stress tests. Aiden has so far been clear of LQTS, Allison however has tested positive. The doctor does not want to implant a defibrillator in Ally right now. She has not had any symptoms so far and her age is also another factor. He wants to start with a beta blocker to keep her heart rate from becoming too fast to prevent her from having an event. This also means a drastic change in her lifestyle. She is no longer allowed to participate in PE or any activities that would raise her heart rate for a prolonged period of time. Pretty drastic for an eleven year old! But, she is doing really well with it all though, she is amazing and Hank and I are so proud of her! We want her to have as normal a childhood as we can which is why I am writing to you all. Allison would be able to do more activities like swimming and PE, cheer, have sleep overs etc. If she had an External Automatic Defibrillator (AED) she could keep with her at all times so if she did have an event- this machine could save her life. The reasoning behind having one is because the survival rate is extremely good if she were to receive a shock within the first 3-5 minutes. Whereas after 5 minutes the survival is very poor and it takes emergency crews between 8-12 minutes to arrive and use an AED machine. Even then being without oxygen for so long would likely have caused brain damage if they were able to revive her. We have tried to get one through our insurance but they will not cover it. They said it's "not medically necessary". Can you believe that? It could save our daughters life, but it's not necessary?? We looked at buying one ourselves but the average cost is $1400 with the pads, etc.

So I am on my knees asking you all if there is any way you could donate or loan us any amount of money to help buy one for her. I know times are hard for everyone and please do not feel obligated, but if you could we would be eternally grateful!

If you would rather send a check our address is :
2310 Robin Dr.
Bellevue, NE.
68147
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