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This fundraiser ended on 06/16/12

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The funds will be used for medicals costs and travel expenses related to care not covered by insurance.

Hannah is my 17 month old daughter. As long as I can remember Hannah has had "issues" with growing...not tall enough...not weighing enough. She has been labeled a Failure To Thrive child (at I think 9 months).
Hannah has had severe acid reflux, which is being treated with Zantac, asthma which is being treated with 2 different meds given twice a day on average as well as a controller med or allergy med. She is also on a specialized formula that has about 240cal/per 8oz just to help her body function right now.
Recent Lab work results show that Hannah has little to no growth horomone in her body. If you don't have this you can't grow. We will be required to make monthly trips to Denver so she can receive growth horomone shots.
We are awaiting a lab result to "confirm" that she has what her genetics doctor has already told us she has...Russell Silver Syndrome. The results take about 6 weeks to get.
We will be taking Hannah to Denver (a 7 hour trip) at the end of May to see 3 maybe 4 different specialist.
The MAGIC foundation puts on a convention every year, this year near Chicago, IL to educate parents and medical professionals on rare growth issues like Russell Silver Syndrome. I am also hoping to be able to attend this so that I can better learn about Hannah's condition.
Thank You so much for your time,
April, Hannah's Mom
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