$16,609 of $20,000
98 donations

This fundraiser ended on 01/30/12

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The Todd Neva Benefit Fund will help the Nevas build a handicap-accessible house as Todd faces ALS.

Todd was diagnosed with ALS, also known as Lou Gherig's disease, in June of 2010. ALS is a disease that damages the connection between the brain and the muscles. The nerves responsible for coordinating how the muscles function slowly die. Consequently, the muscles gradually become weaker and deteriorate. The disease affects the muscles in the legs, arms, mouth and throat. People with ALS (PALS) ultimately become paralyzed. The average life expectancy is 3 to 5 years although some PALS live longer.

In Todd's case, the disease is progressing relatively slowly. Todd's arms are weak to the point where he is not able to do some basic tasks and his legs fatigue with even moderate exercise, but he is still working (with the help of voice dication software) and walking. Nonetheless, he will eventually need a wheelchair and a handicap-accessible house. Todd and Kristin evaluated their current house and determined that renovations required to make the home accessible would be too costly.

Todd has a dream to build a handicap-accessible home near Kristin's parents so that she will have the support of family when Todd needs care. He designed a handicap-accessible home and selected a builder. The home will be built on the same property where Kristin was raised.

After Todd's diagnosis, Todd and Kristin put their current house on the market, and they hoped to roll the equity over to make the down payment on the new home. But after a year and a half on the market, their house still has not sold and it is clear that most of the equity is gone. They are not sure exactly what their need is as they do not know how low they will need to go to sell their current home. (They currently have their house priced $25K less than they purchased it for but it is likely they will need to reduce the price further.) Todd and Kristin plan to aggressively sell their house this spring and hope to build next summer.

Donations to the Todd Neva Benefit Fund will be used for the down payment on an accessible home. Any additional funds raised may also be used for other medical expenses or accessibility equipment, such as a handicap accessible van.

If you prefer to donate by mail, checks can be made payable to Todd Neva Benefit Fund and sent to the Nevas. For those in the area, funds can be deposited directly into the Todd Neva Benefit Fund at any Johnson Bank location.
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