Alexis and Taylor
The Family & friends of Alexis and Taylor are uniting to raise money for the girls medical costs & related expenses not covered by insurance
As many of you know, we have 3 beautiful girls. Our oldest, Julianna, is our 5 years old. Alexis Grace, our second baby, was born June 7, 2007 and our 3rd daughter, Taylor Faith, was born June 4, 2009. Alexis and Taylor were both born with a very rare genetic disorder called ML-II or I-Cell disease.
I-Cell disease is a very rare metabolic storage disorder called Mucolipidosis II or "I Cell." Alexis and Taylor are missing the Lysosomal enzyme which is responsible for breaking down complex carbohydrates in cells. Due to this missing enzyme, their little bodies experience a build up of storage material on their hearts, bones, lungs,...etc. The doctors only gave Allie and Taylor up to 10 years at the most to live. However, we know that God has the final say. We know that He is the creator of everything and we are still believing God for miracles for my beautiful girls.
We have health insurance, but it doesn't cover everything such as a wheel chair van or modification if that is possible. The financial burden of all this is beginning to weigh down on us. So it's with humility and hope that we turn to our family, friends and loved ones for support.
We have been extremely blessed by all the support shown on here and through out our community. Recently our ramp was built and paid for by some very generous people who have recently come into our lives. Thank you Mr. and Mrs. Stoltzfus who funded this project and have taught us so much about giving and blessing others in the midst of struggles, to Phil, Karen, Shanna and Jerry for organizing and heading up the ramp project from the beginning. However, we still have some medical bills to pay off and we are in need of a wheelchair van. We love and appreciate you all!
The one who blesses others is abundantly blessed; those who help others are helped.
Many thanks to all who have donated so generously.
We very much appreciate your support, love and prayers! Thank you.