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$23,837 of $50,000
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161 donations

This fundraiser ended on 12/31/12

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The family & friends of Cristian Fernandez are uniting to raise money to help him with his battle against Infantile Tay-Sachs disease.

Our adorable nephew Cristian was recently diagnosed with Infantile Tay-Sachs disease. This devastating and shocking diagnosis has plunged his family into a nightmare from which they cannot awaken. Cristian is 2 years old. He has a big sister, Isabella, who is 4 years old and two loving parents, Alex and Gilda.

For those who are not familiar with Tay-Sachs, it is a HORRIBLE disease that prevents the body from producing critical Hex-A enzymes that are used to break down fatty proteins that build up in nerve cells. In the Infantile form of the disease, the increased build-up of this fatty substance around the brain causes the child to slowly go blind, deaf, and paralyzed. The typical life expectancy for these little angels is age 4 or 5. Tay-Sachs is one of the most HORRIFIC diseases that a child should ever have to endure.

Cristian was born on June 29, 2010 and developed like most baby boys slowly learning to sit-up, crawl, and stand-up in his crib. At about 12 months of age, his parents noticed that he was no longer progressing like he should and instead was regressing. After taking him to a neurologist, they found out that he had Hypotonia, which is characterized by low muscle tone. His parents immediately started taking him to daily therapies with the hope that his muscles would strengthen. After 6 months of therapy, Cristian was not getting better and the neurologist recommended genetic testing to determine if there were any neurological issues.

On March 27, 2012 our family received the devastating news that Cristian indeed had Infantile Tay-Sachs Disease. There are no words to describe what his parents and our family have been feeling since his diagnosis...

There is presently no cure for Tay-Sachs. However, scientists in the US and other countries are working on new treatments. These experimental treatments represent Cristian’s only HOPE.

Although all odds are against him, we are NOT GIVING UP and WILL CONTINUE TO FIGHT for a cure for our beloved Cristian!

Due to the increased medical bills and special care that will be required for Cristian as his disease progresses, we humbly ask for your donations to aid his parents with these costs.

If you are more comfortable sending donations directly to Cristian's parents, we ask that you make them payable to CRISTIAN FERNANDEZ, and mail them to the following address:

Cristian Fernandez
15461 SW 27th Street
Miami, FL 33185
Also, you may contact them at hope4cristian@gmail.com to send them well wishes and any information that may benefit Cristian.

God Bless You and Thank You for Your Support.

Sincerely,

The Fernandez Family

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