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$23,695 of $30,000
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130 donations

This fundraiser ended on 07/31/12

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The Family and Friends of Nicole Nielson are uniting to raise money to help with her battle against 2 rare and extremely painful diseases.

Please help Nicole Nielson in her fight against Parry Rombergs and Trigeminal Neurgalgia.

Only 1 in one million people contract this disease and there is NOT ONE specialist in Canada that has any experience in this field. Parry Romberg is one of the rarest auto immune disorders in the world and there is NO cure.

Nicole has been in and out of hospitals and emergency since the worst of the decline in December for treatments due to extreme pain involving a plethora of tests, specialists, and diagnosis. She has been taking heavy anti-seizure medications and steroids to treat pressure in the brain, trigeminal neuralgia and to delay the onset of full seizures, of course which all have their own set of debilitating side effects. Nicole has been spending most days in pain and darkness dealing with overall excruciating pain; she is extremely sensitive to light and sound as the neuralgia and swelling have increased exponentially in the last few months.

As part of the Parry Romberg’s autoimmune syndrome, her body has begun to shut down and she is now struggling with chronic chickenpox (shingles), infections throughout the head/brain, eye infections, loss of eye lashes, chronic sinus and respiratory infections. Signs of arthritis also are prominent in her back, and lesions were found on spine which are now pooling blood and causing additional swelling to the brain.


Although we all know Nicole to have the most gentle spirit and to hold a smile no matter what, she is struggling even to just be herself. We are in the process of getting her to the Mayo Clinic in Minnesota and she needs help as she has been not able to physically work for months and has been struggling to get funding to pay for trip to the Mayo.

Please help in any way possible.
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