Myasthenia is a chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness and fatigue of the voluntary muscle groups. According to estimate by the Myasthenia Gravis Foundation of America, Myasthenia Gravis affects 20 individuals out of 100,000. While there currently isn’t a cure for Myasthenia, effective treatments are available. Medications, IV treatments, and removing the thymus gland are all possible regimens available for those afflicted with Myasthenia. Since Myasthenia is a rare disease, not much research has been made to find the average cost over a lifetime for those who have this neurological disease. Even with health insurance, treating Myasthenia can be costly.
Meet Jenny. She has been through many IVIG transfusions, which provide her with needed antibodies to fight infection and aid in easing her symptoms of Myasthenia. Jenny’s IVIG treatments average about $2,000 a month. Recently, her doctor recommended she remove her Thymus, which could result in remission from Myasthenia. Jenny’s friends and family rallied around her to create a GiveForward fundraising page to help her with expenses before and after the surgery. The surgery went well, and Jenny is already feeling more energetic. However, bills for the first two hospital stays (out of five) total over $244,000!
All of us at GiveForward are sending Jenny lots of healing vibes! Be sure to check out Jenny’s story and show her some love and support.