Hemophagocytic Lymphohistiocytosis, also known as HLH, is a disease that affects 1 in 50,000 births. According to Cincinnati Children’s Hospital, an experienced facility in the nation in treating HLH, “HLH is a rare disorder of the immune system in which too many infection-fighting cells are produced and activated, causing damage to organs.” Treatment is crucial for those with HLH, as the condition is life-threatening. Many patients must undergo a bone marrow transplant in order to be cured of HLH.
Hemophagocytic Lymphohistiocytosis Fundraisers
Moira Sickler, a charming toddler with an infectious smile, was diagnosed with HLH after a series of ear infections and days of running a high fever. She completed a round of chemotherapy and steroid treatment before waiting for a bone marrow transplant. In an update posted on the page, Team Captain Lexi says “I’m amazed at how awesome she is, and she’s only 2 1/2 years old!! I’m sure this upcoming experience will shape the person she becomes. How could it not?! My earnest prayer is that she will emerge from the other side with as bright and open an outlook on life as she has now.” We are happy to say Moira received a bone marrow transplant on January 17th and is on the road to recovery!
Aspen Franklin is an amazing little girl who is bravely battling HLH as well. Her mother Brittney, started the fundraising page to raise funds to offset the costs of traveling to Cincinnati’s Children’s hospital from their home in Washington state, which specializes in HLH treatment. January must be a special month for adorable warrior girls battling HLH on GiveForward, because Aspen is preparing for her bone marrow transplant as well! It was a wonderful Christmas gift, summed up perfectly by Brittney in an update: “We will be so glad when all of this is behind us, but cannot be more thankful that we have a donor match. This is by far the best Christmas present we could have ever asked for. For someone to donate so selflessly to a complete stranger is a miraculous gift.”
Moira and Aspen’s loved ones started fundraising pages for emotional and financial support during their journey through treatment to recovery, and received not only monetary support, but incredibly heartfelt words of support and encouragement from friends and family. The resilient and optimistic nature of these young girls is beyond inspiring, and all of us at GiveForward are sending Moira and Aspen lots of healing vibes from our office in Chicago!