This story about one of our youngest users is a heartbreaking reminder about why it is so important for communities to come together and support one another during times of crisis.
Born in Manhattan, NY in the early hours of a humid July 10 at 36 weeks, Minty Python weighed in at a modest 4 lbs 13oz. Amazingly, Minty did not even need to go into NICU.
6 weeks later, on August 24, Minty was crying a bit more than usual. Her pediatrician immediately recognized full-blown
hydrocephalus, and a CAT scan hours later revealed a mass. A temporary drain was put into Minty’s head that night
An MRI the next day confirmed a tumor at the base of Minty’s brain, and the tumor was removed that night. Minty was discharged on September 11, having undergone 4 head surgeries in 11 days, all before she turned 8 weeks old. The original diagnosis of desmoplastic medulloblastoma was countered in mid-September with anaplastic ependymoma. Minty started on the Headstart III protocol in October, which is 6 rounds of high-dose chemotherapy, ending in an autologous stem-cell rescue of leveled bone marrow. The aim is to avoid radiation in children under the age of 10 years.
Minty tolerated the chemo well, and with a lot of bouncing in and out of hospital, as well as a couple of 3-week stints inpatient, completed 5 of the 6 rounds. Then, an MRI on March 12, 2010 discovered several lesions that had grown on high-dose chemo. Minty was immediately pulled off the protocol, and multiple doctors/institutions confirmed the diagnosis of approximately 4 new cancerous tumors.
Since attacking the tumor did not work, the next step was to starve the tumors by going after the blood vessels that fed them, (a process called anti-angiogenesis). Minty began chronic low-dosing of 4 oral drugs a day, 7 days a week, as well as working with energy healers. Sadly, she had to be pulled off the antiangiogenesis when she was no longer able to keep the drugs in her system, and Minty left us the day after her 1st Birthday, on July 11th 2010.
All of Minty’s neurosurgery was with Dr. Anderson at Columbia in New York, and all her oncology treatment was at NYU’s Langone Medical Center, and The Stephen D.Hassenfeld Clinic with Dr.Gardner. When not drinking milk (about 8 hours a day), Minty loved to flirt with anyone who’d lay with her, and she endured the many dress up sessions her mum put her through. She loved to honk people’s noses and hear them go “Beep-beep!” The word “baby” sent her into a fit of giggles, and her favorite song was “Rainbow Connection.” Wave anything vaguely resembling a camera in front of her, and Minty would light up, puff her chest out, and basically goes nuts.
We’ll leave you with Minty’s eulogy from her mum:
“In such a short time, Minty made such a big impact. She came into the world surrounded by love, and she left surrounded by love, with the sounds of people celebrating her life. Indeed, Minty’s birthday party was her gift to us.
A healer thought Minty chose her departure on the most significant of days, stating there was a new moon, and an eclipse, making it the day that would be the most healing for her loved ones that she left behind, and rebirth.
Minty was a little wonder, who brought out so much love from so many people. She opened all our hearts, and in one year, Minty taught us more about love than most people do in a lifetime. This little girl changed the world she came into in ways most of us can only dream of.
It is easy to say Minty is no longer suffering, but the end is difficult to accept, even if expected. I know the love we all have for Minty in our hearts overflows and fills every space and void. I encourage you to have a cheerful goodbye to Minty’s body, since we cannot say goodbye to her soul, ever.
Rabindranath Tagore wrote: “Death is not extinguishing the light; it is putting out the lamp because the dawn has come.”. Araminta’s short but powerful visit with us will never be forgotten.”